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In 2009, the Child Neurology Foundation proudly announced the creation of Infantile Spasms Awareness Week. The goal of IS Awareness Week is to provide pediatricians, child neurologists, parents and caregivers with objective educational tools which will increase awareness and understanding of infantile spasms. Early and aggressive treatment can impact the prognosis of infants diagnosed with IS. This important educational initiative will help to ensure that physicians have an increased awareness and understanding of IS. It will also make much needed educational materials available to the parents and caregivers of afflicted infants.
"Infantile Spasms Awareness Week is a great project for many reasons. Most obviously, it shows the importance of the recognition of such a potentially devastating disorder. It also shows the fact that industry and the child neurology community can cooperate in a responsible and ethical way and advance the causes in which we both believe."
Lawrence Brown, MD
Associate Professor of Neurology and Pediatrics
Children’s Hospital of Philadelphia
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The Child Neurology Foundation wishes to thank all of the doctors involved in creating the content for all materials involved in IS Awareness Week. CNF also wishes to thank Questcor Pharmaceuticals - the sole sponsor of IS Awareness Week, for their unrestricted educational grant making IS Awareness Week possible.
"I am looking forward to the launch of IS Awareness Week. So often, rare diseases such as infantile spasms are overlooked. This important initiative from the CNF and Questcor will help to ensure that child neurologists have an increased awareness and understanding of IS and it will also make much needed educational materials available to the parents of infants afflicted with IS."
Dr. John Bodensteiner,
President of the Child Neurology Society
Professor of Child Neurology
Barrow Neurologic Institute
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This website has been produced as part of the Child Neurology Foundation-sponsored Infantile Spasms (IS) Awareness Week. IS Awareness Week is supported via an educational grant from Questcor Pharmaceuticals. (Questcor had no involvement in the content of this website.)
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